16p Genetic Syndrome Foundation
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To provide up to date, practical and digestible information and guidance for families to promote children and individuals with 16p11.2 deletion to reach their full potential while celebrating the joys of individual variation. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
Services Offered
Rare disease advocacy alliance member listing pending review.
Website
Features
Our mission is to treat and integrate 16p11.2 Genetic Variances seamlessly throughout the health, education and societal landscapes by 2030. We do it for our children.
Location
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