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A Foundation Building Strength

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. A Foundation Building Strength’s mission is to find treatments for Nemaline Myopathy (NM). AFBS works to address issues for our NM families from all angles, including advancing research, providing information about care, offering family support groups and ways to connect, and creating opportunities for in-person interaction and education at conferences. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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