A Star for Ben Foundation, INC DBA STAR FOUNDATION
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Salla Treatment and Research Stands with the unwavering belief that no disease is too rare for science and viable treatment options. STAR Foundation looks to create family networks, educational resources, and meaningful science into the ultra-orphan rare disease called Salla. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
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