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Abrafeu – Brazilian Association for Facioscapulohumeral Dystrophy

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. “To promote a better quality of life for individuals with facioscapulohumeral muscular dystrophy through the dissemination of information, guidance to families, society, and professionals interested in their treatment.“ Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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