ADNP Kids Research Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Advancing the awareness and understanding of ADNP Syndrome through various initiatives. Our primary focus is to support and fund research for developing treatments and drugs to combat the syndrome. Additionally, we aim to increase awareness and scientific understanding of ADNP Syndrome, promote individualized specialty care and protocols, and provide support to families. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.