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Adult Polyglucosan Body Disease Research Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To improve the diagnosis and treatment of APBD, to support individuals and families affected by the disease, and to increase awareness of APBD among health professionals and the public. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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