Ann Steffens Scleroderma Research Foundation, Inc.
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. – Support and promote research toward treatment and cure of scleroderma, Degos disease, and other related disorders – Promote awareness and understanding of these disorders, especially among health-care professionals – Encourage collaborative efforts, nationally and internationally, aimed at realizing these goals Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
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