APDS Rare Diesease Coalition

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The APDS Rare Disease Coalition empowers patients and families affected by Activated PI3K Delta Syndrome through education, advocacy, and global support. We connect communities, promote awareness, encourage early diagnosis, and collaborate with medical and industry partners to improve care, resources, and hope for all impacted by APDS. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.