ARPKD/CHF Alliance
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To educate, advocate, support, and advance research specific to Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
Services Offered
Rare disease advocacy alliance member listing pending review.
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