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ATAD3A Patient Advocacy Alliance

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The ATAD3A Patient Advocacy Alliance is committed to improving the lives of individuals affected by ATAD3A gene-related disorders, including Harel-Yoon syndrome. We support groundbreaking scientific research, provide information and a support network for patients and families, and advocate for improved medical care. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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