Ava Grace Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The Ava Grace Foundation’s mission is to support patients and families and to advance the research of UPD-14 (Uniparental Disomy of the 14th Chromosome) also known as Kagami-Ogata Syndrome. We also promote education and awareness of UPD-14 among medical professionals, caregivers, and the general population. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.