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Baine’s Legacy

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Baine’s Legacy’s mission is to spread awareness of Ornithine Transcarbamylase Deficiency and find and educate at-risk families who may be unaware of the condition. We do this through fundraising events and helping others in the OTCD community. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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