Go Back
Report Abuse

BDSRA Foundation

Description

BDSRA Foundation Our long-term vision is a world without Batten disease. Our mission is to support Batten families and strive for a cure. We advocate for the families, disease awareness, and the urgency for novel treatments. Learn More Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease patient advocacy group listing pending review.

There are no reviews yet.

Author Info

matt.toresco@archo.io

Member since 4 months ago
  • matt.toresco@archo.io
View Profile