Beacon: for rare diseases

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Beacon is a UK-based non-profit organisation that is building a united rare disease community with patient groups at its heart. Our patient group trainings help these often small and voluntary organisations to form, grow, and professionalise. It is through our events and trainings that patient groups have the opportunity to connect and collaborate with others across the rare disease space. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.