Being Positioned, Inc.

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Being Positioned is a nonprofit organization that seeks to empower and improve the lives of adults living with rare genetic disorders. Our mission is to help individuals discover their purpose through traveling, building community, and creating memorable experiences. We grant all-expenses-paid Journeys (trips) to adults 21+, diagnosed with life-altering rare genetic disorders. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.