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Breathe Support Network

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. MISSION STATEMENT The Breathe Support Networks mission is to provide support and education for pulmonary fibrosis patients and their families, helping them to better #LIVEwithPF. This includes, but is not limited to: – education about pulmonary fibrosis – guiding patients and families on how to talk to their healthcare team – providing tips to live a healthier more productive life – providing information about other pulmonary fibrosis resources Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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