Canadian Association for Porphyria

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Awareness – raising awareness of porphyria and its impacts, Advocacy – helping get timely access to appropriate treatments, Information and Support – providing one on one and group support and resources to people who have or are seeking a porphyria diagnosis Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.