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CASK Warriors Foundation Inc

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. CASK Warriors Foundation Inc. is a 501(c)(3) nonprofit dedicated to funding research to cure CASK Gene Disorder in boys, an ultra-rare, X-linked neurological condition affecting about 50 known boys worldwide. We bridge the gap between diagnosis and treatment by uniting families, scientists, and clinicians to drive innovative, targeted therapies—paving the way to help girls and other rare diseases. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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