CCHS Network

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Building Community, Empowering Patients, Championing Research. The CCHS Network has a multi-focused mission of education and support of our families and CCHS patients, inter-family and family-physician communication, and supporting and facilitating CCHS research. Our vision is a future where CCHS is no longer a life-threatening diagnosis! Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.