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CF Get Loud

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To fight for patients across Canada and help them gain access to rare disease medicine. CF Get Loud made history when we removed federal roadblocks preventing CF patients the ability to access Trikafta. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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