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CHAMP1 Foundation – Europe

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. On Jan 2nd of 2023, the CHAMP1 Foundation – Europe was created with the goal of finding a treatment and cure for children affected with CHAMP1 mutations. CHAMP1 Foundation – Europe is in close collaboration with CHAMP1 Research Foundation, USA (2018), and CHAMP1 UK (2023). Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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