CHAMP1 Research Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The mission of the CHAMP1 Research Foundation (CHAMP1) is to improve the lives of those affected by changes to the CHAMP1 gene through early detection, clinic research, the development of effective treatments and support, increased public awareness, family support and patient advocacy. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.