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Charitable Foundation Orphanni Synytsi

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Supporting people living with rare diseases in Ukraine by providing their crucial needs in treatment, rehabilitaion, diagnostics that are not covered by the State healtcare system. Informational, advocacy, psychological support for patients and their families. Supporting Ukrainian hospitals that provides specialized medical care for rare disease patients. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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