Childhood Tumour Trust

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Childhood Tumour Trust arepassionate about empowering children, young people and their families and carers affected by the genetic condition Neurofibromatosis Type 1. We run activity camps for children, organise family days out, run online classes, help provide counselling and produce information resources about NF1. We also campaign to raise awareness and improve pathways of care. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.