Chronically Me

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Chronically Me aims to amplify patient voices above clinical definitions through publishing patient stories, connecting over 150k patients with curated resources, cultivating a community of 144k individuals online all living with chronic conditions, and leading youth programs to shape the change-makers of tomorrow. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.