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Citrin Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Citrin Foundation is a research-driven, non-profit organization set up to tackle citrin deficiency. Our goal is to ultimately find effective treatments and a cure for the condition. We fund research projects to better understand the condition and develop new therapies. We also provide support to citrin deficiency patients and their families globally. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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