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Claire’s Place Foundation, Inc.

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Claire’s Place Foundation is a charity providing support to individuals, children and families affected by cystic fibrosis (CF). We were founded by thirteen-year-old Claire Wineland who was born with CF. She envisioned this foundation as a source of hope, strength and joy for others living with CF providing both emotional and financial support. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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