Coffin-Lowry Syndrome Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The mission of the Coffin-Lowry Syndrome Foundation (CLSF) is to provide information and support for families, caregivers, relatives, educators and medical professionals affected by, or working with, individuals diagnosed with Coffin-Lowry Syndrome. We also maintain the only global CLS registry. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.