Cornelia de Lange Syndrome Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The CdLS Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.