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Cri du Chat Research Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The mission of the Cri du Chat Research Foundation (CDCRF), the parent-led global organization dedicated to accelerating translational research focused on using cutting edge science to develop therapeutics to improve the major symptoms associated with 5p- syndrome in order to increase the quality of the life and independence level of every individual in the world living with this rare disease. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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