CTNNB1 Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our mission is to raise funds, promote collaboration between researchers and organize research to better understand the disease that will ultimately lead to treatment solutions and improve the quality of life of people affected by CTNNB1 syndrome. We organize conferences to disseminate scientific advances, educate parents and physicians about the symptoms and latest research, Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.