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Cure CLCN4

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Cure CLCN4 is a registered charity aimed at providing support, raising awareness and funding medical and scientific research for effective treatments for CLCN4-related neurodevelopment condition, a rare genetic condition that causes intellectual disability and other problems such as epilepsy, behavioural disorders, movement disorders and microcephaly. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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