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Cure HSPB8

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To improve the lives of patients living with HSPB8 Myopathy and their families by developing treatments and providing information about the condition Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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