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Cushing’s Support & Research Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. CSRF’s mission is to provide information and support for patients and their families, to increase awareness in the medical community and the general, to support and collaborate on research, and to be a resource and referral for healthcare professionals. Our registry will create new datasets that explore quality of life issues that affect the disease course and life after remission. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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