Danon Disease Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The Danon Foundation empowers people living with Danon disease with trusted information, support and resources to navigate life with this rare condition. We collaborate with key stakeholders, support research initiatives, and deliver patient insights to advance the development of therapies for Danon disease. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.