Dazzle4Rare
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our mission is to unite patient advocates and non-profits organisations supporting rare and associated communities for a week-long virtual advocacy event to signal boost their messages. This means when we exchange our critical messages, we’re able to reach the family and friend networks of others outside of our own communities. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
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