Diamond Blackfan Anemia Foundation

The mission of the Diamond Blackfan Anemia Foundation is to advance research initiatives that promote a better understanding, therapeutic strategies and a cure for this rare bone marrow failure syndrome. We are dedicated to providing patient advocacy, support and education services to individuals, families and medical professionals resulting in improvements in the diagnosis, clinical treatment and management of the disorder, while enhancing the quality of life of affected families worldwide.

(dba icc) a conference organized to provide a venue for the exchange of ideas and foster new collaborations among dba clinicians and scientists, document results from ongoing clinical trials and coordinate efforts for new trials, bridge the gap between clinicians and scientists working on dba to promote translational research, and encourage young clinicians and scientists to enter into dba as independent investigators.

(ASH) exhibition at the American society of hematology annual meeting (ASH) attended by approximately 20,000 worldwide hematologists to provide the latest clinical and research information pertaining to diamond blackfan anemia.

Diamond Blackfan Anemia Foundation is a 501(c)(3) nonprofit (EIN 16-1459422) based in West Seneca, NY.