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DLG4 SHINE Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our mission is to improve the quality of life for children and families impacted by DLG4 SHINE through supporting collaborative research among international medical professionals, nurturing a family community, and raising worldwide awareness. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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