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Dravet Syndrome European Federation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To be the voice of the European Dravet Syndrome patient community.​ To work together to minimise the impact of this disease by improving diagnosis and management, and supporting research that transforms the lives of people affected by Dravet Syndrome.​ ​ Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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