DYNC1H1 Association

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our mission is to improve the lives of people with mutations in the DYNC1H1 gene and to create opportunities for research on DYNC1H1 with a constant drive towards low-risk, high reward treatments. Our commitment to our community is to forge support networks within the diagnosed persons, providers, and outside community to make the wait for treatments easier. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.