ECD Global Alliance

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The ECD Global Alliance is dedicated to the awareness, support, education, and research related to Erdheim-Chester Disease. The organization works with the global community to accomplish the following: (1) Raise Awareness of ECD; (2) Provide support to those affected by the disease; (3) Advocate for and support research programs; (4) Share educational material and support collaborations. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.