Ehlers-Danlos Syndromes New Zealand

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our Mission is to improve the wellbeing of those with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders in Aotearoa New Zealand by raising awareness, improving knowledge by health professionals and providing support to patients. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.