Emily’s Entourage

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Emily’s Entourage (EE) accelerates research and drug development for the final 10% of people with cystic fibrosis (CF). By providing critical leadership and coordination, EE drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite lifesaving treatments and a cure for the final 10%. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.