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End Alexander Disease

Description

End Alexander Disease End AxD’s Mission is to be a catalyst for research and development of a treatment, and eventual cure, of Alexander Disease, and to help those with this disease get the care they need. End ExD raises funds to support groundbreaking research in Alexander Disease, hosts a patient registry to create a larger pool of participants for future clinical trials and help understand the features of Alexander Disease, and promotes awareness and education campaigns through its website, as well as in-person conferences and events. Learn More Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease patient advocacy group listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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