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Factor-H

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Humanitarian organization providing medical and social assistance to families affected by Huntington’s disease (HD) in Latin America. HD is a genetic disorder that affects the brain. Currently there are no effective treatments to prevent or slow progression of the disease. Even though HD is a rare disease, there are regions in Venezuela, Colombia and Peru with the highest incidence in the world. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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