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FD/MAS Alliance (incorporated as Fibrous Dysplasia Foundation)

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The FD/MAS Alliance is the leading 501(c)(3) nonprofit that serves individuals and caregivers affected by fibrous dysplasia/McCune-Albright syndrome (FD/MAS), a rare bone and endocrine disease. As a community-driven organization, we advance research, foster the development of evidence-based treatments, provide critical education, and amplify the voices of those impacted by FD/MAS. Join us. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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