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Foundation to Fight H-ABC

Description

Foundation to Fight H-ABC The Foundation to Fight H-ABC provides information about TUBB4A-related leukodystrophy to spread awareness about this degenerative disease, and raises funds for research on gene therapy treatments that could stop the degenerative effects of H-ABC. Learn More Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease patient advocacy group listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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