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Global Hydranencephaly Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. We work to ensure the preservation of human rights for people with hydranencephaly, a rare neurological condition. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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