Grant’s Giants Pompe Awareness Nonprofit
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Mission: To serve, educate, advocate, and support the Pompe community both locally and nationally. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
Services Offered
Rare disease advocacy alliance member listing pending review.
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