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Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. “Our focus is universal rare and undiagnosed disease advocacy. We provide a centralized hub for legislative policy education, clinical research curation, and resource mapping to empower all families and caregivers in navigating complex medical and state support systems.” Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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